Author Archives: emily

About emily

I love home in all the ways. I love being content and still pushing ahead to more. I love fresh air and how it makes me realize I'm so small in this great, created universe.

letting go the gift

Sometimes I make up jokes and just tell them to myself.

This morning I considered how perhaps the most poignant expression of “the Lord gives, the Lord takes away” will end up being about my hair loss. I did cry about having leukemia, multiple times. I cry when fears hit me too, and I cry when I feel fierce love and joy.

But right now the most likely thing I’m crying about (should you catch me doing so) is that I’m starting to lose my hair. And it’ll keep going until there’s not much left, if any. I knew I liked the hair I have, but I didn’t realize how even my heart is attached to it. I’m mad and I don’t want to lose my hair.

Which is what leads me to what Job said when he lost so many more important things. The Lord gives and the Lord takes away. And then: blessed be the name of the Lord.

This will be a hard lesson for me in trusting Him, and I don’t even know what I need to trust Him for. When my hair falls out, He has not changed, and really I haven’t either. He gave me the hairs, He knows how many there are now, how many there will be in ten minutes, and He can take them away. He made each one, and He made me. They were only meant to be temporary anyway; their time is simply ending sooner than I’d strongly prefer.

All is grace. We have received such good gifts from God, but whether they’re ours or someone else’s, they never stop belonging to God. And what a comforting thought just came: I never stop belonging to God.

I may never be content with this situation. I hope I can, but regardless, I will remind myself that I will never stop belonging to God.

Glory be, what good news this is.

the twist in the journey

It’s been two weeks and a day since I learned something very new and important about myself: I have cancer. It’s leukemia, and it’s treatable. It’s not a guarantee. Nothing is guaranteed.

Over those weeks, so much has happened, and so many feelings and realizations I have yet to document, even to myself. For now, I want to express something God gave me yesterday morning as I was trying to stay still in bed, lying next to my husband in the early morning. The night before, we read together from Job 40-42, where God at last answers Job’s laments with the only answer that really matters: I AM God.

It was a lot to take in as hubs read aloud, yet comforting and humbling. This now brings to mind one of my favourite lines in all of literature, from C.S. Lewis’s Til We Have Faces:

I know now, Lord, why you utter no answer. You are yourself the answer. What other answer would suffice?

Having slept on that truth from Scripture, particularly the very end,

Then Job answered the Lord and said, “I know that you can do all things, and that no purpose of yours can be thwarted. ‘Who is this that hides counsel without knowledge?’ Therefore I have uttered what I did not understand, things too wonderful for me, which I did not know. ‘Hear, and I will speak; I will question you, and you make it known to me.’ I had heard of you by the hearing of the ear, but now my eye sees you; therefore I despise myself, and repent in dust and ashes.”

I awoke with a jumble of contemplations, questions, and prayers. And the more I talked with God, the heavier I sensed His presence on me, like one laying a warm, steady hand on my back that was also a poultice for anxiety and despair.

And here is what came out of the depths of my heart:

who am i to deserve the beauty of the stars?

the adoring affection of my husband’s eyes.

the refuge of sleep.

the glory of colours.

the gift of words.

letters from friends.

the comfort of my mother.

the deep friendship of my sister.

the capacity of my legs.

the wonder of air plants.

of all plants.

the squishiness of puppy faces.

the smile of a favourite baby.

my whole family intact, and together right now in one house.

appliances that function.

the sweet chill of a popsicle.

feeling my husband’s feet when mine are cold.

the glimpses of my dad that show through sometimes.

a fire in the hearth every morning.

an afternoon of snow.

that nausea can end.

the freedom of my mind.

who am I to receive? i am free. i am undeserving of freedom, yet i am free. because the Lord is my hope, my soul will live forever and i have nothing to fear regarding separation from Him.

 

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Then I wept, such profound sobs of acknowledgement of God’s greatness as I’ve not experienced in years. I have had a clear purpose for my daily life and longterm ideas before, but now, it’s focused even more narrowly. So all I could muster to speak after this visitation was, “I’m going to tell people how good You are.”

.

God is too much for me to handle.

And He is always enough.

.

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More updates on specifics regarding my condition are available on caringbridge.org, if you search under my name. Here, I hope to simply do more of the same – to write about how God is our one true home. That’s all I care about and it’s all that matters.

on my dad

I don’t think I’ve ever really written about my father. I’ve told my journal some things, but not like this.

My father is an incredible man. I’ve always believed his life story should be a screenplay, such a fascinating life he’s led.

He is soft-spoken and humble. He’s an artist; all his life he’s worked with his hands, be it with paint, wood, tools. He’s a maker, and I learned it from him.

He’s gifted with wit, and I learned that from him too, perhaps to my mother’s chagrin. His dry humour is one of many things I inherited from his English homeland.

He has Alzheimer’s. And the odd thing is, because of that I’m realizing that have lost memories as well – memories of him when he was more himself. As a child, you don’t think to yourself, “I really ought to soak this all in. I should remember what Dad did today. I should consider his self, who he is, and treasure our time together.” But when your dad starts to change, and you realize you’re losing him, that’s when you try to remember what he used to be like.

I would never have put these words to it then, but I think the father of my childhood was a man who wore life lightly. He cared immensely about important things, political and spiritual. His conversion experience to Christianity and all that came before and after made him very serious about his faith and about the reality of God and darkness and salvation. He would study Scripture earnestly. He loved to talk about what he had read, what he learned. Yes, he was completely serious about God. But joyfully so. I remember so many moments listening to him share some wonderful truth, with an amazement in his voice, a gratitude. I learned wonder from him too, it would seem.

But still, he worried less about things non-eternal. He loved to play and to make jokes, to laugh. He wasn’t always responsible, and I remember that causing some problems. But I wonder if he just wasn’t worried. He just trusted God. My mom may have a different take on it, as I’m sure I would if I had understood more.

Good grief, I love my dad so much. I love who he was, but also who he is. He’s not the same.

I think of marriage as a solemn, hopeful pledge to actively love the person you’re marrying, as well as all the people they will be. You have no idea what they will be like; we change so much. But really, this is the way every relationship progresses. If you choose to stay in the relationship, you’re just going to see lots of different people.

That helps me when I think about my dad. We really are losing him. Increasingly, he’s forgetting names, and how to do basic things. He still enjoys puns, but they’re occasional now, and most of the time he doesn’t follow whatever conversation is happening around him. He’s a different person. But we all are, aren’t we? I feel I’m unrecognizable from the me of 5 years ago, mid-college. He’s different, and I feel I’m losing him, but he would be different from his old self, even if he had all his vigor and presence of mind.

So this is the father I’m meant to have right now. It’s far from what I want. It is painful to see someone you love decline. And, he’s a wonderful man. He’s easy-going, and he still loves to laugh. He’s hard to reach in an intimate way, but he still understands affection. This is the father I have now, and I’m grateful. There’s so much that’s hard about this time, especially for my mother, as she tries to find the best care for him. There’s so much that’s uncomfortable about repeating something over and over, about explaining something simple and seeing it make no sense to him, about making sure he’s included and okay. It’s different from having a father with no disease. I’ll be honest: I don’t like it.

And I’m grateful. My sister was using this sort of phrase recently, and it helps me so much. Sometimes things that seem opposing can both exist. It’s paradox, and paradoxical things can only be reconciled in one way. I hate what’s happening to my dad. And I’m grateful for this time, for so many reasons. Our family has grown closer. I’ve learned about grief and I hope I’m growing through this. All of this is reconciled in Christ, because only in Him do I have hope and reason to be grateful. Christ understands illness; if He didn’t, He wouldn’t have worried about healing people. He considers illness to be a problem. He also has shown me so much love, such grace, and has promised health and restoration when He comes again. To remain in the despair toward which I tend when I consider my father – that would be only acknowledging one thing that’s true. That would be to live something less than true. Because there is more. There is the everyday grace, the little lights in life when my dad makes art, when he says something hilarious, when he rides his bike, when he praises God. And there is the promise of future grace, when we will be united to God, when we will all be healed for good. That is the other thing that’s true.

They don’t cancel each other out. They don’t make this whole situation neutral. This is what it means to experience life paradoxically. The tears are pain and they are joy. They are anguish and they are peace. They are love, both in grief and in gratitude.

Life is rich and full and raw, and my heart is trying to figure it out.